Behind the Mask of Moebius Syndrome: A Memoir
Behind the Mask of Moebius Syndrome: A Memoir by Cristina Faragli and Foreword by Ronald M. Zuker M.D.
English | 2016 | ISBN: 0786498382 | 208 pages | EPUB | 8 MB
English | 2016 | ISBN: 0786498382 | 208 pages | EPUB | 8 MB
Moebius syndrome is a rare congenital neurological disorder affecting two to 20 out of every million newborns. Patients suffer from total facial paralysis and often cannot even close their eyes or move them from side to side. Unable to smile, frown or otherwise express emotion, their everyday personal relationships are deeply affected. Even eating (chewing) is a problem.
This memoir of a woman with Moebius syndrome provides a first-person view of life "behind the mask."